About Us

HemoG.L.O.W.bin (Giving Life Over Worry) is a dynamic 501 (c)(3) organization dedicated to driving Sickle Cell Disease awareness through the power of storytelling and media.

Our founder Alexandria Smith is an advocate and sickle cell warrior who deeply believes that compelling storytelling, media partnerships, and community collaboration, can create a brighter, more informed, and compassionate world for SCD warriors.

Mission

HEMOG.L.O.W.BIN's mission is to turn storytelling into change for Sickle Cell Disease (SCD) warriors and their families by fostering more understanding, empathy, and eliminating stereotypes.

Vision

Our vision is to see a world where every person living with Sickle Cell Disease feels supported, represented and has access to equitable care and resources - with the goal of changing the way society views this disease, driving toward improved quality of life for SCD individuals and the removal of stereotypes, discrimination and, ignorance towards SCD.— Alexandria, Founder HemoG.L.O.W.bin

Values

Empathy

We prioritize empathy, striving to understand and connect with the experiences of individuals affected by Sickle Cell Disease.

Advocacy

We are dedicated advocates, actively working to raise awareness, improve healthcare, and support the Sickle Cell community.

Inclusivity

We embrace inclusivity, recognizing and valuing the diverse perspectives and voices within the Sickle Cell community.

Collaboration

We foster collaboration, partnering with individuals, organizations, and communities to drive positive change and maximize our impact.

Creativity

We celebrate creativity as a core value, harnessing its transformative power to craft compelling storytelling and ignite initiatives that promote awareness and understanding of Sickle Cell Disease.

Passion

We are passionate about the impact we intend to have within our communities. We are passionate about bringing more awareness around sickle cell disease.

HEMOG.L.O.W.BIN intends to make an impact for Sickle Cell Disease across these three main pillars

At HemoG.L.O.W.bin, we are confident sickle cell disease awareness can be increased through this impact strategy below:

Two Methods That Support Our Strategy

Narrative Accretion

Narrative Accretion acknowledges that stories across various media formats, including documentaries, news, podcasts, and entertainment programs, accumulate to create a collective impact that surpasses the individual narratives. While each story may reveal crucial insights into pressing contemporary issues like rape, criminal justice reform, chronic illness awareness, or poverty, the true significance lies in how these stories collectively contribute to an ongoing dialogue among viewers and artists, fostering a deeper understanding and discussion of these important subjects.

Source: Jeffrey P. Jones, Ph.D.

Narrative Transportation Theory

Narrative transportation, commonly known as transportation, is the phenomenon of becoming fully engaged in a story. Whether through print, film, podcasts, or virtual reality, individuals experiencing narrative transportation become deeply immersed cognitively, emotionally, and visually within the narrative. This immersive engagement often leads to enhanced enjoyment of the story, and those consuming the narrative may find themselves more readily influenced by the messages conveyed in the story.

Source: Melanie C Green, Ph.D.

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